المراجعات 13
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J
2023-11-7 11:15:36

I recently discovered an amazing organization that...

I recently discovered an amazing organization that focuses on sarcoidosis research. They are doing excellent work in raising awareness and funding for this challenging disease. The website offers a wealth of information and resources for patients and their families. I'm truly impressed by their commitment and dedication. Keep up the good work!

C
2023-10-10 0:23:36

Foundation for Sarcoidosis Research is doing a gre...

Foundation for Sarcoidosis Research is doing a great job in raising awareness and funding for sarcoidosis research. The website is informative and user-friendly, providing valuable resources and support to patients and their families. I highly recommend this organization!

J
2023-9-15 9:51:57

I recently discovered an incredible organization d...

I recently discovered an incredible organization dedicated to sarcoidosis research. Their work in raising awareness and funding research is remarkable. The website offers valuable resources and support. I highly recommend the Foundation for Sarcoidosis Research to anyone interested in supporting this cause.

B
2023-8-19 14:37:52

👍 This organization is making a real impact on the...

👍 This organization is making a real impact on the sarcoidosis community. Their efforts in raising awareness and funding for research are highly commendable. The website is easy to navigate and provides valuable resources and support. I'm grateful for the work they do, and I am proud to support the Foundation for Sarcoidosis Research!

C
2023-6-21 15:06:05

I recently came across a fantastic organization th...

I recently came across a fantastic organization that focuses on sarcoidosis research. They are doing incredible work in raising awareness and funding for this challenging disease. The website is a wealth of information, providing useful resources and support for patients and their families. I'm truly impressed by the Foundation for Sarcoidosis Research and their dedication to making a difference. Keep up the great work!

L
2023-6-13 19:16:28

I recently came across a wonderful organization th...

I recently came across a wonderful organization that focuses on sarcoidosis research. Their dedication and efforts to raise awareness and support patients are truly admirable. The website is well-designed and offers a wealth of information and resources. I highly recommend the Foundation for Sarcoidosis Research!

B
2023-5-31 2:22:08

🙌 The Foundation for Sarcoidosis Research is a fan...

🙌 The Foundation for Sarcoidosis Research is a fantastic organization. They are making a real difference in the lives of sarcoidosis patients. The website provides valuable resources and support. I'm grateful for their efforts in raising awareness and funding for research. Keep up the good work! 👏

E
2023-5-13 9:40:06

The Foundation for Sarcoidosis Research is doing a...

The Foundation for Sarcoidosis Research is doing a tremendous job in raising awareness and funding for sarcoidosis research. Their dedication and commitment to finding a cure for this rare disease is truly commendable. I am grateful for the work they are doing and the support they provide to patients and their families. The website is informative and user-friendly, making it easy to access valuable resources and information. I highly recommend this organization to anyone looking to support a worthy cause.

A
2023-4-29 3:13:54

I appreciate the work done by the Foundation for S...

I appreciate the work done by the Foundation for Sarcoidosis Research. Their commitment to raising awareness and funding research for sarcoidosis is commendable. The website is informative and provides valuable resources for patients and their families. I highly recommend this organization!

1
2023-4-28 22:29:48

As someone affected by sarcoidosis, I am glad to h...

As someone affected by sarcoidosis, I am glad to have found the Foundation for Sarcoidosis Research. They are doing incredible work in raising awareness and funding research for this disease. The website is user-friendly and offers a wealth of resources and support. Their commitment is truly commendable. Thank you!

K
2023-1-31 8:28:13

I'm really pleased with the Foundation for Sarcoid...

I'm really pleased with the Foundation for Sarcoidosis Research and the work they are doing. The website is easy to navigate and provides helpful information for patients and caregivers. I appreciate their dedication to raising awareness and finding a cure for sarcoidosis. Highly recommend!

P
2023-1-12 2:06:18

The Foundation for Sarcoidosis Research is doing a...

The Foundation for Sarcoidosis Research is doing amazing work in their efforts to raise awareness and support research for this disease. The website is user-friendly and provides valuable information and resources. I'm grateful for their dedication and the difference they are making in the lives of patients and their families.

حول Foundation for sarcoidosis research

مؤسسة أبحاث الساركويد (FSR) هي منظمة غير ربحية مكرسة لإيجاد علاج للساركويد وتحسين رعاية المرضى الذين يعانون من هذا المرض. الساركويد هو مرض التهابي يصيب أعضاء متعددة في الجسم ، بما في ذلك الرئتين والقلب والجلد والعينين. يمكن أن يسبب مجموعة من الأعراض مثل ضيق التنفس والسعال والتعب وآلام المفاصل والتورم.

تم تأسيس FSR في عام 2000 من قبل مجموعة من المرضى الذين أصيبوا بالإحباط بسبب نقص الأبحاث في مرض الساركويد. منذ ذلك الحين ، نمت لتصبح واحدة من المنظمات الرائدة في هذا المجال. تتمثل مهمة FSR في تمويل الأبحاث في الساركويد وتقديم الدعم للمرضى وعائلاتهم.

إحدى الطرق الرئيسية التي تحقق FSR مهمتها هي تمويل المشاريع البحثية. قامت المنظمة بتمويل أكثر من 4 ملايين دولار في شكل منح منذ إنشائها. دعمت هذه المنح دراسات حول موضوعات مثل علم الوراثة وعلم المناعة وخيارات علاج الساركويد.

بالإضافة إلى تمويل المشاريع البحثية بشكل مباشر ، تتعاون FSR أيضًا مع المنظمات الأخرى لتعزيز المعرفة حول الساركويد. على سبيل المثال ، تشارك مع مؤسسات أكاديمية مثل كلية الطب بجامعة جونز هوبكنز لإجراء تجارب سريرية على علاجات جديدة لمرض الساركويد.

جانب آخر مهم من عمل FSR هو تقديم خدمات الدعم للمرضى وأسرهم. يتضمن ذلك الموارد التعليمية حول الساركويد بالإضافة إلى مجموعات الدعم حيث يمكن للأشخاص التواصل مع الآخرين الذين يمرون بتجارب مماثلة.

كما تدعو FSR أيضًا نيابة عن الأشخاص الذين يعيشون مع الساركويد من خلال زيادة الوعي حول هذا المرض بين صانعي السياسات والمتخصصين في الرعاية الصحية. وهذا يشمل جهود الضغط على كل من مستوى الولاية والمستوى الفيدرالي لزيادة التمويل للبحث في الأمراض النادرة مثل الساركويد.

بشكل عام ، تلعب مؤسسة أبحاث الساركويد دورًا أساسيًا في تعزيز فهمنا لهذا المرض المعقد مع توفير خدمات الدعم التي تشتد الحاجة إليها لأولئك المصابين به. من خلال تفانيها في إيجاد علاج للساركويزوديس ، تواصل FSC اتخاذ خطوات واسعة نحو تحسين نتائج الرعاية مع الدعوة بلا كلل نيابة عن المتضررين من هذه الحالة المنهكة.

مترجم
Foundation for sarcoidosis research

Foundation for sarcoidosis research

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