المراجعات 21
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A
2023-11-24 20:50:14

The ehe foundation 😊 is doing an outstanding job i...

The ehe foundation 😊 is doing an outstanding job in fighting EHE. Their continuous efforts and research in finding a cure for this disease are truly impressive. I have immense respect for the team and hope that they keep up the good work. 👍

S
2023-11-19 6:59:09

It's amazing to see the ehe foundation making such...

It's amazing to see the ehe foundation making such a positive impact in fighting ehe. Their website fightehe.org has all the necessary information and resources in one place. I am grateful for their efforts and dedication.

M
2023-11-18 23:18:40

The ehe foundation is doing a great job. I am real...

The ehe foundation is doing a great job. I am really impressed with their commitment towards fighting ehe. The website fightehe.org is very informative and user-friendly. Keep up the good work! 👍

L
2023-10-23 12:38:32

The ehe foundation's website fightehe.org is an ex...

The ehe foundation's website fightehe.org is an excellent resource for anyone seeking information about the disease. I really appreciate their efforts in spreading awareness and making a difference. Thumbs up!

D
2023-10-18 23:45:07

I recently came across a foundation fighting again...

I recently came across a foundation fighting against a certain disease. Their website fightehe.org provides valuable information about the disease and ways to prevent it. The resources available on the website are really helpful. Kudos to the team for their efforts!

R
2023-9-1 17:08:03

I have been following the work of The ehe foundati...

I have been following the work of The ehe foundation, and I must say their dedication in fighting EHE is commendable. The impact they have made in raising awareness about this rare cancer is incredible. I hope more resources are allocated towards finding a cure. #FightEHE

B
2023-8-7 0:44:01

I found the website fightehe.org extremely helpful...

I found the website fightehe.org extremely helpful in understanding the disease and ways to prevent it. The ehe foundation's work is really commendable. They are making a significant impact in the fight against ehe.

N
2023-8-1 17:03:37

I recently learned about The ehe foundation and th...

I recently learned about The ehe foundation and their work in fighting EHE. Their dedication towards raising awareness and finding a cure is truly commendable. They are making a significant difference in the lives of patients and their families. Keep up the good work!

J
2023-7-30 13:30:45

The ehe foundation is making a positive impact on ...

The ehe foundation is making a positive impact on the lives of EHE patients. The support they provide is truly remarkable. Their website and resources are informative and helpful. I appreciate their work towards finding a cure for this rare cancer.

T
2023-7-29 12:15:51

Recently, I discovered an organization dedicated t...

Recently, I discovered an organization dedicated to EHE research. Their efforts are truly praiseworthy. By focusing on finding a cure and improving the lives of EHE patients, they are making a significant difference. I am grateful for their work.

K
2023-7-12 17:33:23

I recently came across a foundation dedicated to f...

I recently came across a foundation dedicated to fighting EHE. Their website doesn't mention the name, but their work is praiseworthy. Their dedication towards finding a cure for this rare form of cancer is truly remarkable. I hope more people get to know about them and support their cause.

P
2023-6-10 1:44:39

The ehe foundation has been working tirelessly to ...

The ehe foundation has been working tirelessly to combat EHE. Their dedication and commitment are truly inspiring. The awareness campaigns they have organized have helped to educate many people about the disease. I am grateful for their efforts.

C
2023-6-6 20:06:15

I came across a foundation fighting a certain dise...

I came across a foundation fighting a certain disease and found their website to be very informative. The resources provided on fightehe.org are really useful in understanding the disease and its prevention. I appreciate the work done by the foundation.

S
2023-5-24 22:14:05

👏 This foundation is doing an excellent job in spr...

👏 This foundation is doing an excellent job in spreading awareness about the disease. The website fightehe.org is a great resource for people looking for information. I appreciate the team's dedication and their contribution to the cause.

C
2023-3-9 11:57:35

I stumbled upon the ehe foundation's website fight...

I stumbled upon the ehe foundation's website fightehe.org and it has been a great source of information for me. They have done a fantastic job in raising awareness about the disease. Keep up the good work!

T
2023-3-6 6:33:35

The ehe foundation is doing an average job in figh...

The ehe foundation is doing an average job in fighting EHE. While their efforts are commendable, there is still a long way to go in terms of research and finding a cure for this rare cancer. They need to focus more on spreading awareness and collaborating with other organizations to maximize their impact.

E
2023-1-18 10:47:50

The ehe foundation is doing a great job in spreadi...

The ehe foundation is doing a great job in spreading awareness about the disease. Their website fightehe.org provides valuable information and resources. I am impressed with their dedication and commitment to fighting ehe.

C
2022-12-30 12:02:14

I want to express my gratitude towards The ehe fou...

I want to express my gratitude towards The ehe foundation for their efforts in fighting EHE. Their dedication to both awareness and research is impressive. The impact they have made on patients' lives is significant. Thank you for what you do!

حول The ehe foundation

مؤسسة EHE: متابعة العلاج الفعال لمرضى EHE وأسرهم

مؤسسة EHE هي منظمة 501c3 غير ربحية مكرسة لمتابعة العلاج الفعال لورم الظهارة البطانية الشبيهة بالظهارة (EHE) ودعم مرضى EHE وأسرهم. تأسست المؤسسة في عام 2009 من قبل مجموعة من الأفراد الذين أصيبوا بهذا الشكل النادر من السرطان الذي يصيب بطانة الأوعية الدموية.

EHE هو نوع نادر من السرطان يمكن أن يحدث في أي جزء من الجسم ، ولكنه يؤثر بشكل شائع على الكبد والرئتين والعظام والأنسجة الرخوة. تشير التقديرات إلى أن شخصًا إلى شخصين فقط من كل مليون يتم تشخيصهم بهذا المرض كل عام. نظرًا لندرتها ، هناك خيارات علاج محدودة متاحة للمرضى الذين يعانون من EHE.

تتمثل مهمة مؤسسة EHE في رفع مستوى الوعي حول هذا المرض النادر وتقديم الدعم لأولئك الذين تأثروا به. تعمل المؤسسة بشكل وثيق مع المهنيين الطبيين والباحثين لتطوير علاجات فعالة لمرضى EHE.

يتمثل أحد الأهداف الرئيسية لمؤسسة EHE في تمويل البحث في علاجات جديدة لهذا المرض. من خلال الشراكات مع المؤسسات الطبية الرائدة في جميع أنحاء العالم ، تمكنت المؤسسة من دعم الأبحاث الرائدة في العلاجات الجديدة المحتملة لـ EHE.

بالإضافة إلى تمويل المبادرات البحثية ، تقدم مؤسسة EHE أيضًا خدمات الدعم للمرضى وأسرهم. وهذا يشمل ربطهم مع الأفراد الآخرين الذين تأثروا بهذا المرض من خلال المنتديات عبر الإنترنت ومجموعات الدعم المحلية.

توفر المؤسسة أيضًا موارد تعليمية حول EHE حتى يتمكن المرضى من فهم تشخيصهم بشكل أفضل واتخاذ قرارات مستنيرة بشأن خيارات العلاج الخاصة بهم. يتضمن هذا معلومات حول التجارب السريرية بالإضافة إلى العلاجات البديلة التي قد تكون متاحة.

جانب آخر مهم من عمل مؤسسة EHE هو الدعوة نيابة عن المتضررين من هذا المرض. من خلال زيادة الوعي بالتحديات التي يواجهها الأفراد المصابون بأمراض نادرة مثل EHPHILIPENDOENDOTHELIALIOMA ، تأمل المؤسسة في تشجيع صانعي السياسات ومقدمي الرعاية الصحية على إعطاء الأولوية للبحث في العلاجات الجديدة.

بشكل عام ، تعد مؤسسة EHE موردًا حيويًا للأفراد والأسر المتضررة من هذا النوع النادر من السرطان. من خلال التزامها بتمويل الأبحاث وتقديم خدمات الدعم والدفاع عن حقوق المرضى ، تُحدث المؤسسة تأثيرًا كبيرًا في مكافحة التعليم الصحي الصحي.

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